All of Us Research Program Funding Drops 34 Percent

The six-year-old All of Us research program faces a 34 percent decrease in 21st Century Cures Act funding for fiscal year 2024.

The program is an effort to collect genomic and health data from 1 million or more people from widely diverse backgrounds for research purposes. Vanderbilt University Medical Center runs its Research and Data Center.

All of Us received $357 million for this fiscal year, representing a decrease of $184 million (34%) compared to last year’s allocation. In a blog post, Josh Denny, MD, executive director of the program, said the cut will mean a reduction in most program allocations, resulting in several impacts: a decrease in the rate of new enrollments, a delay in the launch of pediatric enrollment and a slowdown in the collection of new data.

A story in the post. Science He noted that overall, All of Us expects to lose about 600 of the 3,000 full-time positions, largely “front-line staff” involved in hiring. This year’s enrollment will likely fall between “30% to 40% of what it would have been,” Denny told the publication.

In his blog post, Denny said the program would maintain momentum to build on its many accomplishments to date, and listed several of them:
• More than 790,000 people in the United States and its territories have joined the program to drive new discoveries.
• Of the more than 540,000 volunteers who have completed the initial steps of the program, including sharing basic data and samples for analysis, 87% are part of communities that have often been left out of research in the past (including racial and ethnic populations). underrepresented ethnicities, LGBTQI+ communities, residents of rural areas and those with less access to care, people with disabilities and other groups).
• More than 10,000 researchers from more than 750 organizations have registered to access the data. More than 85% of these researchers are from groups that are historically underrepresented in the biomedical workforce, providing further evidence of the program’s reach.

Despite funding issues, Denny said the program is committed to starting pediatric enrollment as soon as possible. “Our goal is to add data links to provide more complete information on environmental factors, clinical care and more. And we see tremendous opportunities to forge new partnerships through additional studies built on our core protocol, such as the Precision Nutrition for Health Study supported by the NIH Common Fund. “This way, partners can leverage the All of Us infrastructure for novel research, while helping to expand our data set for the broader scientific community.”

Future declines in Cures funding will be even more significant in fiscal years 2025 and 2026, after which that funding stream will expire, Denny added. “The President’s fiscal year 2025 budget request is $541 million for the program, which includes planned funding for Cures. While our budgetary circumstances are forcing us to make adjustments to our immediate plans, our commitment to our participants and the protection of their data remains unwavering, and our motivation to continue advancing precision medicine and health equity is stronger. never”.

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